John Glanvill • Anxiety Specialist & Researcher • Anxiety • OCD • Bipolar • ADHD • Energy • Online Anxiety Treatment Course

Chronic Fatigue, ME & Fibromyalgia

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Chronic Fatigue, ME & Fibromyalgia

December 8, 2024 JohnG 0 Comments

Adrenal fatigue & feeling emotionally exhausted

I want to say a few words about fatigue, an aching body and the feeling of total exhaustion. I know this is a very touchy subject, and nobody really has all the answers about what is happening to you (often including your doctors!)

So, I want to write about things I’ve seen over the last twenty years and ponder what you might be able to do to help yourself over and above medication and what your doctors have already done for you/ to you.

Nearly every person I have ever worked with who was experiencing chronic fatigue had many of the same symptoms and also similar behavioural attributes.

  • They were nice people (perhaps too nice)
  • They were people pleasers
  • They felt like victims of their situation
  • They were more dominant than they would like to admit
  • They found it hard to delegate
  • They worried too much
  • There was always another person who was looking after them or who they looked after. 
So, I’ve always wondered (assuming you have no other illnesses) what percentage of that exhaustion comes from just being a worried/pleaser/controller and the effects that continued stress plays out on your biology?

Classically, the medical world has labelled and defined these fatigue conditions in the following manner:

Chronic Fatigue (Symptom)

Definition: Chronic fatigue refers to prolonged and unexplained tiredness lasting six months or more. It is a symptom, not a diagnosis, and can result from various medical or psychological conditions, such as thyroid disorders, anaemia, or depression.

Characteristics:

  • Persistent exhaustion that doesn’t improve with rest.
  • Often linked to a specific underlying cause.
  • Tends to resolve when the root issue is addressed.

 

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

Definition: ME/CFS is a complex chronic disorder marked by severe, unrelenting fatigue that worsens with physical or mental effort and doesn’t improve significantly with rest.

Key Features:

  • Post-Exertional Malaise (PEM): A significant worsening of symptoms after even minor activity.
  • Unrefreshing Sleep: Waking up feeling just as tired as before sleeping.
  • Cognitive difficulties (“brain fog”): Issues with focus, memory, and concentration.
  • Orthostatic Intolerance: Symptoms intensify when standing or sitting upright for extended periods.
  • May also involve muscle/joint pain, flu-like symptoms, or headaches.
  • Diagnosis is typically based on clinical criteria, such as the CDC or International Consensus Criteria.

 

Fibromyalgia

Definition: Fibromyalgia is a long-term condition characterised by widespread musculoskeletal pain accompanied by fatigue, sleep problems, and mental fog.

Key Features:

  • Widespread Pain: Discomfort or tenderness across multiple body areas.
  • Fatigue and sleep disturbances, often similar to those in ME/CFS.
  • Fibro Fog: Cognitive issues like difficulty concentrating or remembering.
  • Increased sensitivity to pain, temperature, sound, and light.
  • Often associated with central nervous system sensitisation, where pain signals are amplified.
  • Frequently occurs alongside other conditions like migraines, irritable bowel syndrome, or depression.

How They Differ

  1. Primary Concern:

    • Chronic Fatigue: Tiredness is the main issue, often linked to an underlying condition.
    • ME/CFS: Severe fatigue with post-exertional symptom flare-ups and other systemic issues.
    • Fibromyalgia: Generalised pain and tenderness are the defining features, with fatigue as a secondary concern.
  2. Response to Physical Activity:

    • Chronic Fatigue: Fatigue persists but doesn’t dramatically worsen after exertion.
    • ME/CFS: Physical or mental effort can lead to days or weeks of symptom exacerbation (PEM).
    • Fibromyalgia: Pain may increase with activity, but it doesn’t trigger the PEM seen in ME/CFS.
  3. Pain:

    • Chronic Fatigue: Pain is not a primary feature.
    • ME/CFS: This may cause muscle or joint discomfort but isn’t the central symptom.
    • Fibromyalgia: Chronic pain is the hallmark symptom.
  4. Underlying Cause:

    • Chronic Fatigue: Often stems from another condition.
    • ME/CFS: The exact cause is unclear but may involve immune dysfunction, nervous system abnormalities, or viral triggers.
    • Fibromyalgia: Thought to result from heightened pain sensitivity, genetics, or stress.
 

Regardless of any labels or categories, I believe there are three important questions you should ask yourself:

1. What can I do to reduce the stress, worry, and anxiety affecting my body?
2. How can I increase my energy through diet, sleep, and letting go of the need for control?
3. How can I view life from a more empowered perspective that allows me to express my true desires for my future?

Making these three behavioural changes can lead to significant improvements that you may notice within a couple of months. This includes switching to a ketogenic diet by reducing carbohydrates, achieving deep sleep through effective sleep protocols, and examining your current life situation from a different viewpoint.

Concerning the negative issues you might be facing right now, you basically have three reasonable options:

1. Accept them and worry less.
2. Address and change them.
3. Distance yourself from them.

My course teaches you strategies to manage all three options and how to find more self-worth, courage and energy to face life in a new manner based on optimism and trust rather than fear, pessimism and doubt!

Of course, you need to start this journey of change from a place of exhaustion (sorry), but that is just how it is. Just waiting for it to go away by itself when so much of it is caused (unknowingly) by you being who you currently are is not a sensible strategy.
 
I promise you, there is much you can learn to be able to live in a manner that recharges (rather than depletes) your energy. 
 
In its simplest form… 
 

Your body responds to what you hold in mind

Our bodies often struggle to distinguish between real-life stress and the imagined stress that arises from our worried thoughts. A clear example of this can be observed while watching an intense action film. During such moments, our bodies may react physically as if we were truly experiencing the events on screen. I recently found myself feeling tense and agitated while watching an episode of Prison Break—my heart was racing, and I felt anxious and on edge, all because of a show I wasn’t actually a part of. I was causing myself stress without even realising it!

The impact of our thoughts on our physical health is significant. Fortunately, once we become aware of this connection, we can start to take steps to address it.

What’s in a name?

In my experience, the medical label you assign to your biological exhaustion is largely irrelevant. While it may provide some comfort to have a name for what you’re feeling, it doesn’t really matter unless the person can explain its origin and suggest ways to address it. Otherwise, the label is fairly meaningless.

One perspective I have generated from years of working with people who suffer from chronic fatigue is….

  • Under 25 years old Doctors call it ME (Myalgic encephalomyelitis)
  • Between 25 & 45, Doctors call it CFS (Chronic Fatigue Syndrome)
  • Over 45 Doctors call if Fibromyalgia

To me, they are all the same: biological exhaustion following stress, trauma, illness or times of great worry.

The recovery diagnosis is always the same too…..

  • Learn to stop thinking
  • Get out of the way of your recovery
  • Stop trying to control people and events
  • Change that which in your life needs changing
  • Keep gently moving
  • Make sure your illness is not due to caring for another person (over and above caring for yourself first!)

Note: I am suggesting you do these things over and above what your doctors recommend for you, this is not medical advice, just some common sense perspectives that I’ve seen help many people, including myself.

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